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yannick-robin eike mirko
May 22, 20237 min read
meeting someone with my rare disease
2 83 days until Rare Disease Day. Hello friends, happy Monday. I hope you had a restful weekend. I am going to share a voice recording...
yannick-robin eike mirko
Jun 8, 20228 min read
the surgery is never going to happen.
Friday July 24th, 2020 9:30 am “I can drive,” I say to Bianca as she prepares me, dressing me with the robe she used the last time she...
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